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2:30am
Awake again.  I have been talking the ear off my Nursing Tech.  Somehow we got on the subject of my story and how far I have come in my journey– not just from Oregon to Florida, but from the first hint of cancer, from the mistakes made in my care that caused the rapid growth, from having no where to get treatment because I had no insurance, radiation finally at the private center, surgery at OHSU, to H. Lee Moffitt Cancer Research Center.

God is good, people.  No matter what is happening in your life, know that God is bigger than whatever it is.  Don’t forget to invite him in!

I need to get some sleep.  I am having trouble getting my fingers to produce the words I want on the page without the use of the back button every three words.  I will try this again.

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4:50am
I almost slept through this time slot this week.  But at the last moment, when the tech was backing out of the room, she quietly said, “Mrs. McNabb,  When you wake up again to use the bathroom, let me know so I can weigh you, OK?”  “I’ll get up now.”  And here I am.  But I was able to have a BM.  (haha Look at me, like an old gramma, I say, “BM” ) and that is good.  I weighed three pounds more than yesterday.  That means I am holding fluids.  They will have to give me something that will make me give reduce the fluids.  I will have to stay close to my potty for a while.

My hands are more jumpy.

I am

I don’t know what I meant to say there.  I fell asleep!  I’ll catch ya later,

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10:00am
I slept through to 7:30, but I am still so sleepy.  I had breakfast and a shower and got dressed in regular clothes.  I am now waiting on the doctors to make their rounds.  I will take a walk after they come and go. I need to feel the sun on my face. But I will definitely need a nap today.

There is a show on The History Channel now, “Exodus Decoded” which promises to show proof that the Exodus- when the Jews, lead by Moses left Egypt via a parted sea - really happened.  I am very interested in this show because I am reading the Exodus in my daily Bible reading (the Bible in a year reading) now.  I hope I can stay awake to watch it all.

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12:30pm
The doctors came and went.  Because of my jerky hands and the fact that my eyes are starting to tunnel, they have decided to add Methylene Blue to my arsenal of medications to keep the neurotoxicity at bay.  If you remember, that is what Dr W wanted to use in the first place, but the team decided to use Thiamine first because it is all natural- just a high does of B1.  The Thiamine has been working fine so far.  But they want to stay on top of things. So they are going to add the Methylene Blue - nothing is going to be stopped, just added.   There are some possible side effects of  this chemical compound.  Including dizziness, nausea, vomiting, confusion, headache, fever, ab pain, anemia, blue pee . . . And your skin could turn blue as a Smurf.  Lol   Too bad it’s not October and Halloween again!

I just talked to the nurse about it.  She said as long as the blue stuff is pushed slowly there is very rarely any side effects.  She has seen fingertips turn blue . . . But never the whole person.  The medication has been ordered. But it’s not here yet.

I had a walk already, just in case I don’t get a chance again today.   I had my lunch.  I am ready for whatever.

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3:30pm
I have been sleeping off and on since 1:00 or so.  My nurse brought in the Methylene Blue around 2:00.  It came in a syringe.  She hung a new small bag of clear fluids and ran the Blue through it as we talked.  Before I knew it, it was all in the line and the nurse was on her way out the door.   I soon resumed my on-again, off-again nap.  I didn’t make it to the art studio today, but the nap was more important.  I haven’t been awake long enough to figure out if the Blue juice is making a difference.  I don’t even know if it has been mixing around in there long enough.  I have still been using the back button a bit here as I type.  I am already peeing like a Smurf.   And I am feeling kinda . . . Blue here as I am waking from my nap.  (Sorry I couldn’t resist that one.)  I will let you know how I am feeling as I go.

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9:30pm
Well I haven’t turned blue yet.  After I slept and ate dinner, I was clear again and my hands were able to fold paper again.  I made a few origami creatures and started on some paper beads and I forgot to write about it all. I guess the Methylene Blue is doing it’s job.

I am going to get into my jammies and work on these beads while I watch House on TV and remember Dr H back in Oregon.  (For those who just joined the story: my family dubbed him “House” because he was able to put sense to what was happening to me and he was the only Doctor on the Pacific Coast that could take the sarcoma out of my tush without leaving me a cripple. “House.”)

I have my last bag of both Ifosfamide and Doxorubicin.  I will finish up with them tomorrow night at 9:00 and have an extra bag of the Mesna (this is a piggy back medicine that goes with the Ifosfamide to protect my bladder from bleeding) for twelve hours.  And then I will have made it through another cycle. Four Down.  God is Good.

10:00p
It’s ten o’clock and all I well again.  Tomorrow will be a better day for me.  Today was kinda sleepy!   Time to put this to bed.  And me to bed too.

Go to bed yourself.  And have a great dream.