Day 250- Friday, February 22nd, 2007

22 02 2008

Yesterday was a very long day. Dan and I got home from Moffitt around 7:30p. By the time we kissed and hugged the children and talk about the day with Anita and Dick, my sister and brother-in-law (they were staying with the kids for us), I climbed into bed and stayed there. I apologize for not posting last night. This morning my laptop was acting up again. The first time I wrote this post, the it crashed and I lost it! (Can you say, “Save” . . .) I have been having so many problems with this old thing.   Agggg!    I had to rewrite it as fast as possible. . . The phone was beginning to ring off the hook! LolBut as for my news . . .It’s all good!

Dan and I spent yesterday at Moffitt Cancer Research Institute. We arrived at 11:00ish. Ok, we were late as usual. It’s a long ride from home to the hospital. Anyway, they handed me a tray of cocktails as a prerequisite for the CT scan. Yummy. I had to drink one every half hour for two hours. We found an interesting waiting room with a plug for the laptop and a TV and I drank.

The scan itself takes only about ten minutes. I had labs done after that. And by 3:00p, Dan and I were in an exam room waiting again — this time for the Doctor. Here is what we found out . . .

The scan of the pelvic region turned up nothing of importance! I was concerned about the muscle flap that was transplanted into my backside. I have been feeling hard tissue under the skin and what pain I have comes from that area. I was happy to hear that the transplanted muscle itself did not show as harden on the scan. Dr. W. said that what I was feeling was a hardening of the skin due, most likely, to the radiation. Ok. I can deal with that. The pain must be Fibromyalgia related. The yard sale didn’t help . . .

The scan of the lungs showed a continuation of the good news from last time! What spots are left are still getting smaller. I asked the doctor how many spots are in there.

“Oh, I’d say about forty or so.”

“Forty? How many were there before?”

“In January there were about a hundred.”

Eyes the size of headlights stared into the face of the doctor.

Wow.    A) There were a hundred after the second round and now, after the fourth cycle there are only forty!   That is 60% gone! Praise GOD!

Wow.    B) There are still about 40 spots in there!    My first thought was “I need to praise harder.”

Funny, yesterday morning as I was getting ready for the day, God told me something important –through the voice of Dr. Creflo Dollar. Dr. Dollar was preaching on my TV. “You might have something your asking God to take from you, but God says ‘No, I am using this in your life to get you ready for something else.’ God is making you tough enough for the next fight.” Sounds like my case.  God has plans for me that require me to play this script out. He has given me everything I need to get through it. He has given me the ability to handle a protocol that many can’t tolerate. He has given me strength to get out of bed (when I don’t want to sometimes). He has given me doctors with exceptional knowledge. All he is asking of me is to trust him and never give up.

I can do that.  My God is bigger than Sarcoma.

When we left home yesterday, we brought with us everything we would need to stay over. We were hoping that I could get admitted and get started with the fifth cycle of Chemo.  It would save a trip- and the gas money to get there- if we could combine the reasons for going. As it turns out, there was no room at the Inn. We were told that there were twenty-three people ahead of me — waiting from YESTERDAY for a bed!   Thursday is not a good day for getting in the clubhouse.   So . . . We headed back home.   Instead, I am on the list for Sunday. I liked going in on Sunday last time. Well, “liked” may not be the exact word . . .but it’s better. I can get charged up at Church beforehand and then head up. By the time I get there, there will be a bed ready. It works much better for me.

Now, I get to spend most of the weekend with my littlest children and my husband. Too bad my Kelli couldn’t be here with me too. That would make it perfect! It breaks my heart to be away from her. (I love you Kel!) Tomorrow, we’ll do something fun as a family. God gave us an extra day together. Everyday is precious.

See, he knows better than I do what I need. God is cool.

I wonder what floor he will put me on this time?


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