Day 382– Thursday, July 3rd, 2008
3 07 2008I have so much to report and so little time to do it in. It’s 9:25am and I have to be back to OHSU by noon. I have about thirty minutes to explain. I’ll give it a shot.
The MRI that was postponed for Monday was a circus. Hahah Go Figure. The waiting was NOT the hardest part in this case. As I was coming out of the general anesthesia, I vehemently wanted to know what all these people were doing in my living room. I must not have even been off the slab, because I can still hear them yelling for me to lay still or I would fall off the table. I found out afterwards that I woke up while in the tube and was moving around on them. They had to zap me with more knock-out juice to get me settled back in my cocoon. The next thing I knew, the anesthesiologist, herself, was wheeling me back to recovery, and then she was comforting me as I cried tears of embarrassment. The whole team in both MRI and the Recovery department were great. I was a bumbling idiot! Hahah What the reputation I am gathering at this place. Lolo
There was some serious considerations with this MRI, putting my shenanigans aside. Going in and getting prepped, confirmed Dan and my belief that I have been low in blood oxygen. There was nothing that particular group could do but give me oxygen and document the level. That level was confirmed again on Wednesday in the infusion lab. I will be getting Home Ox as soon as they can get it scheduled. I will be able to judge for myself when I need it.
Then of course, there is the possibility of new tumors. That we didn’t get an answer for until Wednesday. And that would be skipping Tuesday. Tuesday we didn’t have to go to the University. But we did have a three hour appointment with the disability office to ascertain how much assistance that I need from Dan. Now, we know: NONE. Hahah No, not none, just not enough for him to get paid for it. (Turns out 1 in 70 do qualify) Whet we are eligible for is a Home Heath Aid about 90 hours a month. This person can come in and do light housekeeping or what ever I need taking care of. This is paid for by my Disability Insurance. I also have an option of a bather. I met her this morning. She was nice. Had she been a he– Byorn from a high German village where they have no women . . . I might have . . . NO, I wouldn’t. hahah not yet.
Wednesday, we showed up for Chemo and was told that they were waiting for DR R to arrive to see if I was getting my chemo treatment or not. A…WHAT? Yeah, didn’t they tell you? You have a meeting with the radiation people tomorrow, right? Well, there you go.
What the heck. Meanwhile, my feet are so swollen I think they are going to pop and I am, oh, so tired, that I just want to lay back in my chair and take a nap. Turns out that my blood counts were all very low. Three Units of Blood for me it is. It took a couple house just to run down the right stuff and then five hours to drip it all in there. Since we had no idea what the other reason for no chemo was, my PA clued us in.
The pain in my neck and problems in my left arm are, indeed, caused by new tumor growth. I have spots now in the cranial bone — but NOT in the brain, and down my neck spine. Dan and I are meeting with the radiation expert in about an hour now. Evidently, I was the topic of the week at the Sarcoma Interdisciplinary Meeting yesterday. All the best geeky experts in the West– talking about me and plotting about me. Planning about me. Soon there will be a fantastic plan . .. There might be a long simulation done today –Ikky-Yukky . It’s a tube of sorts. Not as scary as the MRI, but…Pray for me.
For me.
Meanwhile, please keep up your part of the plan… PRAY.
Not just for me, now. Pray for everyone. If the person is receptive to being prayed for, then let them know that you are praying for them. If they wouldn’t like it of you prayed….hahah well….
Pray for each other. Pray for everything. Pray for all things.
When praying for me, know that this new development is just another way we can glorify the Lord.
AND the Lord WILL be Glorified.
In All Things.







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